I'm Aware That I'm Rare: the phaware® podcast
Kanalaren Xehetasunak
I'm Aware That I'm Rare: the phaware® podcast
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from me...
Atal Berriak
1129 atal
Lenise Whitley - phaware® interview 556
The Loneliness of Pulmonary Hypertension
After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley final...
Episode 556 - Lenise Whitley
The Loneliness of Pulmonary Hypertension
After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley final...
Nicole Fitzgerald - phaware® interview 555
One Teacher's Unexpected Battle with a Silent Killer
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a b...
Episode 555 - Nicole Fitzgerald
One Teacher's Unexpected Battle with a Silent Killer
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a b...
Jean Elwing, MD phaware® interview 554
Telehealth Is Ending: What That Means for PH Patients
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discus...
Episode 554 - Jean Elwing, MD
Telehealth Is Ending: What That Means for PH Patients
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discus...
Jasmine Wells - phaware® interview 553
You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one she has. P...
Episode 553 - Jasmine Wells
You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one she has. P...
Kevin Allen - phaware® interview 552
The Pulse of a Fighter: Survival, Stigma, and Shaking Up Healthcare
They told him he had months to live. He used them to rewrite the rule...
Episode 552 - Kevin Allen
The Pulse of a Fighter: Survival, Stigma, and Shaking Up Healthcare
They told him he had months to live. He used them to rewrite the rule...
Russel Hirsch, MD - phaware® interview 551
Why Families Belong at the Table: PHriends of the PPHNet
Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to c...
Episode 551 - Russel Hirsch, MD
Why Families Belong at the Table: PHriends of the PPHNet
Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to c...
Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...
Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...
Ashlee Gambino - phaware® interview 549
My name is Ashlee "The Mobwife" Gambino. I'm a retired professional fighter. I've acted. I've done a lot of different things. I am now diagnosed with...
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Episode 549 - Ashlee Gambino
FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING
In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey...
Sophia Esteves - phaware® interview 548
Scars and Survival: Rebuilding Life After a Devastating Diagnosis
After countless hospital stays, new medications, and near-breaking po...
Episode 548 - Sophia Esteves
Scars and Survival: Rebuilding Life After a Devastating Diagnosis
After countless hospital stays, new medications, and near-breaking po...
Richard Channick, MD - phaware® interview 547
The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything
From portable ECMO to catheter breakthroughs, the...
Episode 547 - Richard Channick, MD
The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything
From portable ECMO to catheter breakthroughs, the...
Jenny Yang, MD - phaware® interview 546
The One Type of PH You Can Actually Cure
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...
Episode 546 - Jenny Yang, MD
The One Type of PH You Can Actually Cure
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...
Victor Test, MD - phaware® interview 545
The Diagnosis Delay That's Still Hurting Patients
Despite better tools and more awareness, people with PH are still being diagnosed too...
Episode 545 - Victor Test, MD
The Diagnosis Delay That's Still Hurting Patients
Despite better tools and more awareness, people with PH are still being diagnosed too...
LaRae Hacker - phaware® interview 544
How TBX4Life Is Fueling a Global Collaboration
LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...
Episode 544 - LaRae Hacker
How TBX4Life Is Fueling a Global Collaboration
LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...
Anthony Carrasco - phaware® interview 543
How I Survived Meth Addiction, Lung Failure, and Found Purpose
Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...
Episode 543 - Anthony Carrasco
How I Survived Meth Addiction, Lung Failure, and Found Purpose
Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...
Brandon Jakubowski, MD - phaware® interview 542
Treating Meth-Associated PAH Without Judgment
Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...
Episode 542 - Brandon Jakubowski, MD
Treating Meth-Associated PAH Without Judgment
Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...
Nicholas Kolaitis, MD - phaware® interview 541
The Face of Addiction Isn't Who You Think It Is
Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...
Episode 541 - Nicholas Kolaitis, MD
The Face of Addiction Isn't Who You Think It Is
Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...
Peter J. Leary, MD - phaware® interview 540
How Stigma Blocks Meth-PAH Treatment and How to Stop It
Patients with methamphetamine-associated-PAH often arrive at clinics already car...
Episode 540 - Peter J. Leary, MD
How Stigma Blocks Meth-PAH Treatment and How to Stop It
Patients with methamphetamine-associated-PAH often arrive at clinics already car...
Vinicio de Jesus Perez, MD - phaware® interview 539
The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...
Episode 539 - Vinicio de Jesus Perez, MD
The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...
John Kingrey, MD - phaware® interview 538
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...
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Episode 538 - John Kingrey, MD
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...
Kari Gillmeyer, MD, MSC - phaware® interview 537
Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...
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Episode 537 - Kari Gillmeyer, MD, MSC
Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...